The Deputy First Minister has paid tribute to the life of “force of nature” and passionate Foetal Alcohol Spectrum Disorder advocate (FASD), Allison ‘Allie’ McNamara.
Allie – who hailed from Kinallen, Co Down – together with her husband, Brian adopted two brothers, Reece and Jordan when they were just toddlers.
At the time of their adoption, the couple had no idea the two would later be diagnosed with FASD.
In 2017, Allie set up her own support group in Dromore, ‘FASD Awareness NI’ to help promote an understanding of the condition and provide support to other parents and sufferers.
She never stopped campaigning for increased awareness for the devastating but entirely preventable condition.
Following her passing, her tenacity and dedication was captured beautifully in tribute by Deputy First Minister, Emma Little-Pengelly, who said: “Just so saddened to hear of the passing of Allie (Allison McNamara) of Kinallen.
“Alison was a real force of nature – passionate and relentless in her campaigning on the issue of Foetal alcohol Syndrome and her experience of it through adoption. I learned so much from her about the issues and was honoured to attend her recent conference.
“My deepest condolences to her husband Brian, and the kids Reece and Jordan.
“I know Allie would want me to add her big message – never ever drink when pregnant or even if there is a risk you might be.
“She dedicated so much of her life to being the adopted mummy of the kids, but to raising awareness about the life altering and detrimental impact on drinking during pregnancy. She will be much missed.”
According to the National Organisation for FASD, about 2–4 % of the population may be affected by the lifelong neurodevelopmental condition — meaning roughly 1.2 million to 2.4 million people across the UK could be affected. However, most of these individuals are likely undiagnosed.
Organisations like Allie’s help bring these diagnoses forward by highlighting symptoms and signposting to support.
One such organisation, with which Allie formed a close relationship, FASD Ireland – established in September 2021 – also paid tribute to their memorable “first ever caller” to their new phonelines in 2022.
Said a spokesperson: “Everyone at FASD Ireland is deeply saddened to learn of the passing of Allie Mc (Allison) McNamara from FASD Awareness NI/Oshay’s Brain Domain.
“We extend our heartfelt condolences to her husband Brian, her children Reece and Jordan, her family, friends, and all those across Ireland whose lives Allie touched.
“In 2022, when we announced our new contact number as our phone line was connected, Allie was our very first caller, not 30 minutes later.”
Reflecting on their relationship, their CEO, Tristan Casson-Rennie, shared: “In the past six months I have worked very closely with Allie. We spoke on the phone many times since we launched in 2022, and our main theme was how we could work collaboratively to ensure families could be supported.
“Earlier this year I was absolutely delighted and honoured to be asked to speak at the very first conference organised by Allie in Lisburn, which was well attended, supported, and covered by the BBC.
“The conference is only one of the many legacies Allie leaves behind and she will be sorely missed by the FASD community across Ireland.
“Allie was a passionate advocate, a caring champion for families affected by Foetal Alcohol Spectrum Disorder, and a dedicated collaborator. Her warmth, kindness, and unwavering commitment to raising awareness and supporting those impacted by FASD will be greatly missed. Allie’s compassion, authenticity, and generosity shone brightly.
“Allie’s legacy will live on through her tireless efforts to educate, empower, and support families navigating the challenges of FASD. May her memory continue to inspire us to continue vital work.”
